Kids Beating Cancer Transplant Center
In 2011, Kids Beating Cancer established the Kids Beating Cancer Pediatric Transplant Center at the Walt Disney Pavilion Florida Hospital for Children with a pledge of One Million Dollars ($1,000,000), which shall be used exclusively to support the Pediatric Transplant Program at Florida Hospital for Children. The Pediatric Transplant Program is a potentially lifesaving treatment for all children with one of 72 life threatening malignant and on-malignant diseases such as cancer, aplastic anemia, sickle cell anemia, and various metabolic disease.
Kids Beating Cancer made this gift to honor the memory of John Voight, the beloved son of Dr. and Mrs. Ben Guedes, in perpetuity. In recognition of this generous gift, the Center will be named the Kids Beating Cancer Pediatric Transplant Center.
The construction of the first and only pediatric marrow transplant center in Central Florida will be completed in August 2012 with a “Grand Opening” at that time. However, pediatric patients have been receiving transplants in the adult transplant center since June 2011.
If you wish to attend the Grand Opening and/or tour the new transplant center please contact the Kids Beating Cancer office at (407) 894-2888.
The pledged funds are restricted to:
- Hospital expenses not covered by insurance or any other means for the families in “Fund the Match”
- Medical expenses related to getting the child to transplant
- Medical expenses during the transplant hospitalization that are necessary to help eliminate any delays in receiving the medical care needed to ensure the best possible outcome
Florida Hospital for Children made the following statement in regard to Kids Beating Cancer’s position as a leader in community philanthropy and community involvement.
“This generous gift represents a tremendous expression of Kids Beating Cancer’s continued commitment to children in the Central Florida community. We see your gift as a gesture of friendship and an altruistic investment to make our community a better place to live and receive healthcare. This gift will serve as a lasting example to others of how philanthropy makes our world a better place.”
Kids Beating Cancer Pediatric Transplant Center Programs
“Fund the Match” program funds the lab testing cost to determine if a family member is a match for a child in need of a transplant, funds the donor search for an unrelated donor when family members do not match, funds donor procurement, and the patient pre-workup, all costs never covered by Medicaid, so children get transplantation, without delays, cost per child $10,000 - $45,000. Many children diagnosed with leukemia, cancer, sickle cell anemia, and other related diseases can be cured of their disease with the life-saving treatment of a bone marrow or umbilical cord blood transplant. For many children, a transplant may be the best — and only — hope for a cure. Not all children, who could benefit from this life saving treatment, can access their only hope for a cure, due to the high cost of evaluating potential donors as well as the pretreatment testing. Few families have the resources required prior to even beginning the transplant process. “Fund the Match” removes the financial barriers, allowing these children access to a life saving transplant when they need it, without delays. By funding the uninsured medical expenses, children will receive their transplant at the new Kids Beating Cancer Pediatric Marrow Transplant Center at Walt Disney Pavilion Florida Hospital for Children in Orlando.
“My Room” program, a ‘safe, fun, place’ during a child’s transplant. A customized, themed hospital room done according to each child’s preference, such as Disney Princess, Hello Kitty, or Toy Story with bedding, games, and toys corresponding with the theme and other age appropriate items. The transplant process is lengthy, coupled with an extended stay away from the familiarity and comfort of the child’s own space, causing children to become very homesick. “My Room” puts the child’s distinct fingerprint on the room they will be calling home for many months.
Kids Beating Cancer Children's Support Programs and Services
“Kids need to feel like Kids,” programs, enhance and inspire children from diagnosis to survivorship with fun activities, quarterly parties, milestone celebrations, toys, bicycles and Kids Beating Cancer’s trademark Teddy Bear, “Bunky.”
Kids Beating Cancer Outreach and Education
A trusted resource for the children and families during treatment and beyond, educating and helping children and families deal with questions and concerns as they proceed through the step-by-step process of transplantation.